The breadth of life contained in Jill's new book is incredible. . . . Powerful [and] candid.

ProPublica

Jill is like flowing water. In her pursuit for answers, she is an unassuming force that carves her own path through the unknown, overcoming obstacles with sheer perseverance. Jill has changed the landscape of her disease and provided hope for the future. Her story and her spirit are truly inspiring.

Kimberly Riley Woodruff, MD, MPH

Both heartbreaking and exhilarating, Jill masterfully describes the quest for truth about her rare condition, while capturing some of the hows and whys of research behind rare genetic disorders. This memoir is a testament to her methodical and inquisitive mind, as well as her resilience-Jill Viles is a scientist, period.

Prof. Adema Ribic, University of Virginia

This riveting and eye-opening memoir transports readers into a world shaped by persistence, love, friendship, kindness, and hope. Through the author's extraordinary perspective, we gain a deeper understanding of resilience and the power of human connection-lessons that resonate far beyond the realm of genetic disease. Without a formal degree in genetics, she has been a guiding force, encouraging others to pursue genetic testing to identify and treat Emery-Dreifuss muscular dystrophy and lipodystrophy. Along the way, she introduces us to the profound promise of the genetic revolution.

The Dressmaker's Mirror, University of Nevada, Reno and author of The Dressmaker's Mirror: Sudden Death, Genetics, and a Jewish Family's Secret